Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

Five-year-old Bayne Krause poses for a photo with his mom Marianne. Bayne’s shirt reads, ‘I have Cystic Fibrosis. Help keep me healthy, please social distance.’ Photo: Laurie Tritschler

West Kootenay mom promotes awareness of cystic fibrosis

Marianne Krause wants people to know what it’s like for her five-year-old son to live with CF

A Grand Forks mother is promoting awareness of Cystic Fibrosis (CF) on behalf of her afflicted son.

Over 4,600 Canadians live with CF, a genetic disease that causes chronic lung infections among sufferers, most of whom are children, according to Cystic Fibrosis Canada. Five-year-old Bayne Krause is one of them.

READ MORE: Make-A-Wish: Hillary, 17, goes on dream shopping spree for horse gear

READ MORE: B.C.’s ‘extremely medically vulnerable’ can begin booking COVID-19 shots

Popular misconceptions about the disease are a constant source of frustration for parents like Bayne’s mom, Marianne.

On the one hand, Marianne says people commonly mistake Bayne’s persistent coughing and sweating — the hallmarks of CF — for COVID-symptoms. Bayne does not have COVID, nor is he infectious to others, she told The Gazette.

“My son coughs a lot because he needs to clear his lungs. He is not contagious,” she explained.

On the other hand, she said that people frequently take issue with her vigilance around Bayne’s health. Unlike most five-year-olds, Bayne has to wear a face mask. And he relies on other people not only to wear their face masks, but also to maintain social distancing around him — even though he is almost irresistibly cute.

Kids like Bayne can’t risk getting sick, but it happens. Marianne said it’s touch and go when it does, which is why she said Bayne was rushed to Trail Hospital when he came down with a cold last June. Bayne doesn’t need a fever on top of his condition: His lungs are congested at the best of times, just as his constant sweating leaves him perennially at risk of dehydration.

Most people’s lives don’t revolve around these hard truths, so Bayne literally wears them on his chest.

“I have Cystic Fibrosis,” his T-shirt reads, “Help keep me healthy — please social distance.”

Bayne and his family have gone to great lengths to keep him safe. He hasn’t attended school since the pandemic, Marianne said.

Marianne is asking people who meet Bayne to please respect her and step-dad Charlie’s wishes. Understand that they are taking all the necessary precautions to safeguard his health.

Bayne likes playing disc golf. He likes playing games on his tablet. He likes doing all the things you’d expect most five-year-olds would enjoy. But he needs to take all necessary precautions to stay safe; so that, when the pandemic lifts, he can go back to living his best life.

May is Cystic Fibrosis Month. Marianne and Charlie are asking people to consider wearing the signifying purple ribbon on May 26.

For more information about CF, please consult Cystic Fibrosis Canada’s website at cysticfibrosis.ca.

Grand ForksHealth

Just Posted

Forty sled dogs were seized by the BC SPCA from a Salmo kennel in February. A recent ruling has decided the dogs won’t be returned. Photo: Gounsil/Flickr
BC Farm Industry Review Board rules against Salmo kennel after 40 sled dogs seized

Spirit of the North Kennels was also ordered to pay BC SPCA $64,000

Residents line up outside the Vernon Recreation Complex for their COVID-19 vaccine Saturday, June 5. (Jennifer Smith - Morning Star)
No appointments necessary for first dose COVID-19 vaccine: Interior Health

People can just show up at clinics, register on the spot and get the shot

Provincial Health Officer Dr. Bonnie Henry on Thursday, June 10, mentioned Grand Forks among two other COVID “hot spots” in B.C. Photo: Screenshot - YouTube COVID-19 BC Update, June 10, 2021
PHO Henry says West Kootenay city is a COVID ‘hot spot’ in B.C.

There are 11 cases of COVID-19 in the Grand Forks local health area, according the BC CDC

SD20 now has an electric bus. Photo: Submitted
Kootenay-Columbia School District 20 adds electric bus to fleet

Bus will be incorporated into Castlegar route for next school year

Cougars who kill pets are a potential threat to humans, Conservation Officer Kyle Bueckert said. File photo
Wildlife officials stymied after West Kootenay cougar sighting posted only to Facebook

Conservation Officers are reminding the public to phone RAPP-line when they spot dangerous wildlife

At an outdoor drive-in convocation ceremony, Mount Royal University bestows an honorary Doctor of Laws on Blackfoot Elder and residential school survivor Clarence Wolfleg in Calgary on Tuesday, June 8, 2021. THE CANADIAN PRESS/Jeff McIntosh
‘You didn’t get the best of me’: Residential school survivor gets honorary doctorate

Clarence Wolfleg receives honorary doctorate from Mount Royal University, the highest honour the school gives out

Denmark’s Christian Eriksen receives medical attention after collapsing during the Euro 2020 soccer championship group B match between Denmark and Finland at Parken stadium in Copenhagen, Saturday, June 12, 2021. (AP Photo/Martin Meissner, Pool)
Denmark soccer player Christian Eriksen collapses during game against Finland

Eriksen was given chest compressions after collapsing on the field during a European Championship

Members of the Department of Fisheries and Oceans’ Marine Mammal Response Program rescued an adult humpback what that was entangled in commercial fishing gear in the waters off of Entrance Island on Thursday, June 10. (Photo courtesy Marine Mammal Response Program)
Rescuers free humpback ‘anchored’ down by prawn traps off Vancouver Island

Department of Fisheries and Oceans responders spend hours untangling whale

As stories of the horrors of residential schools circulate after the Tk’emlups te Secwepemc First Nation announced it had located what are believed to be the remains of 215 children, Grand Chief Stewart Phillip of the Union of B.C. Indian Chiefs said he feels a connection with the former students. THE CANADIAN PRESS/Darryl Dyck
2 sides of the same coin: Ex-foster kids identify with residential school survivors

Grand Chief Stewart Phillip says the child welfare system takes Indigenous children from their families

Nathan Watts, a member of the Tseshaht First Nation near Port Alberni, shares his story of substance use, a perspective he said isn’t seen enough. (Photo courtesy of Nathan Watts)
Public shaming, hate perpetuates further substance use: UVic researcher

Longtime addict Nathan Watts offers a user’s perspective on substance use

57-year-old Kathleen Richardson was discovered deceased in her home Wednesday, June 9, 2021. Her death is considered a homicide and connected to the slain brothers found on a Naramata forest road. (Submitted)
Condolences pour in for Kathy Richardson, Naramata’s 3rd homicide victim in recent weeks

Richardson was well liked in the community, a volunteer firefighter with a home-based salon

A person receives a COVID-19 vaccine at a vaccination clinic run by Vancouver Coastal Health, in Richmond, B.C., Saturday, April 10, 2021. THE CANADIAN PRESS/Jonathan Hayward
More than 75% of B.C. adults have 1st dose of COVID vaccine

The federal government has confirmed a boost in the Moderna vaccine will be coming later this month

Airport ground crew offload a plane carrying just under 300,000 doses of the single-shot Johnson & Johnson COVID-19 vaccine which is developed by the Janssen Pharmaceutical Companies at Pearson International Airport during the COVID-19 pandemic in Toronto on Wednesday, April 28, 2021. THE CANADIAN PRESS/Nathan Denette
1st batch of Johnson & Johnson vaccines won’t be released in Canada over quality concerns

The vaccines were quarantined in April before they were distributed to provinces

Most Read