Baby Zoey with parents Kendra and Brett Uniat. Photo: Submitted

Baby Zoey with parents Kendra and Brett Uniat. Photo: Submitted

Castlegar baby with rare disorder progressing towards coming home

Fundraiser for Zoey Uniat has raised more than $50,000

A Castlegar baby with a rare genetic disorder is making progress and her family hopes to bring her home next month.

Zoey Uniat was born to Kendra (Wayling) and Brett Uniat on Thanksgiving 2020 with Congenital Central Hypoventilation Syndrome.

In addition to a number of serious health risks, the disorder causes the baby’s breathing to become too shallow, especially during sleep. This results in an excess of carbon dioxide and insufficient levels of oxygen in her blood. To provide proper ventilation, Zoey now has a tracheostomy tube. She also has a gastrostomy tube to assist with feeding during recovery and if complications with the trach tube arise.

At three months old, Zoey is still in Vancouver being treated at BC Children’s Hospital.

PREVIOUS: Fundraiser started for Castlegar baby with rare genetic disorder

Zoey’s mom reports she has begun to smile and laugh in her own way.

“She is happy and lively and full of smiles,” said Kendra in a recent Facebook post.

“We can hear little squeaks as she is able to push some air past her trach.”

According to her mom she’s grown particularly fond of Chris Stapleton’s song Starting Over, especially when her daddy plays guitar and mommy sings.

“She likes to dance while we play,” said Kendra.

Zoey has also been able to return to breastfeeding after a one-month pause due to recovery from the tracheostomy operation.

Unfortunately there is still a long way to go. Zoey needs to be ventilated 24/7. The next step is working towards having her off the humidifier for two hours at a time so the family can be somewhat mobile for walks or drives.

“If all continues to go well we are hoping to be headed home by the middle of February,” said Kendra.

A GoFundMe campaign has been started to help support the family during this difficult time. So far it has raised over $50,000.

Kendra and Brett, along with their parents Christine (Bourchier) and Rand Wayling of Castlegar, and Heather and Ernie Uniat of Cochrane, are extremely grateful for all the love, support and donations that friends, family and anonymous donors have shared.

Donations can be made through the Help bring Zoey Uniat home GoFundMe page, or directly through e-transfer to Zoeyuniat@gmail.com.



betsy.kline@castlegarnews.com

Like us on Facebook and follow us on Twitter

castlegarHospitals

Get local stories you won't find anywhere else right to your inbox.
Sign up here

 

Zoey Uniat is now three months old. Photo: Submitted

Zoey Uniat is now three months old. Photo: Submitted

Just Posted

A nurse performs a test on a patient at a drive-in COVID-19 clinic in Montreal, on Wednesday, October 21, 2020. THE CANADIAN PRESS/Paul Chiasson
36 new cases of COVID-19, one death in Interior Health

The number of active cases in the region is at 366

Jesse Teindl (left) is grateful for support in his fundraiser for research of a genetic disease that prematurely claimed the lives of his father Tim (right) and uncle Craig Teindl. Photo: Submitted.
Kootenay community steps up for Skinny Genes fundraiser

Fundraiser auction for rare genetic disease raises more than $10,000 for Skinny Genes Foundation

Traffic light at a Trail intersection makes for a quick turn signal.
Dangerous traffic light change, standard procedure

Pedestrians are reminded to wait for walk signal before proceeding on unexpected light change

A health worker holds a vial of AstraZeneca vaccine to be administered to members of the police at a COVID-19 vaccination center in Mainz, Germany, Thursday, Feb. 25, 2021. (Andreas Arnold/dpa via AP)
43 new COVID-19 cases in Interior Health

368 cases in the region remain active

B.C. Health Minister Adrian Dix and provincial health officer Dr. Bonnie Henry head for the B.C. legislature press theatre to give a daily update on the COVID-19 pandemic, April 6, 2020. (B.C. government)
B.C. nears 300,000 COVID-19 vaccinations, essential workers next

564 new cases, four deaths, no new outbreaks Thursday

The B.C. Supreme Court ruled Feb. 26 that the estate of deceased Sooke man and Hells Angels prospect Michael Widner is to be divided between his wife and his secret spouse. (Black Press Media file photo)
Estate of deceased Vancouver Island Hells Angels prospect to be divided between wife and secret spouse

Michael Widner’s 2017 death left a number of unanswered questions

This Dec. 2, 2020 photo provided by Johnson & Johnson shows vials of its Janssen subsidiary’s COVID-19 vaccine in the United States. THE CANADIAN PRESS/AP-Johnson & Johnson via AP
Canada approves Johnson & Johnson’s 1-shot COVID-19 vaccine

It is the 4th vaccine approved in Canada and the 1st that requires just a single dose

Walter Gretzky father of hockey hall-of-famer Wayne Gretzky waves to fans as the Buffalo Sabres play against the Toronto Maple Leafs during third period NHL hockey action in Toronto on Tuesday, Jan. 17, 2017. THE CANADIAN PRESS/Nathan Denette
Walter Gretzky, father of the Great One, dies at 82

Canada’s hockey dad had battled Parkinson’s disease and other health issues

Kelowna General Hospital (File photo)
Second death reported in Kelowna General Hospital COVID-19 outbreak

A total of seven cases have been identified at the hospital: six patients and one staff

Municipal Affairs Minister Josie Osborne speaks in the B.C. legislature, March 4, 2021. (Hansard TV)
B.C. Liberals, NDP sing in harmony on local election reforms

Bill regulates paid canvassers, allows people in condo buildings

(National Emergency Management Agency)
No tsunami risk to B.C. from powerful New Zealand earthquake: officials

An 8.1 magnitude earthquake shook the north of New Zealand Thursday morning

(AP Photo/Richard Vogel, File)
Pandemic stress, isolation key factors as to why Canadians turned to cannabis, alcohol

Study found that isolation played key role in Canadians’ substance use

Most Read